Lead the communications team * monitor current affairs and keep the President informed of that has a direct impact on our community * create, edit and maintain award applications, speeches, event text and website content with management approval * oversee marketing campaigns, media relations and external and internal communications * maintain updated Letter head, Company documents, email signatures and LOGO yearly review with President * Facebook: Maintain and edit the profile bio with President approval (Carion Fenn, Carion Fenn Network, Carion Fenn Foundation) – Monitor and update * Carion Fenn Network - Create blogs to encourage conversations * website editing: content (www.carionfenn.org, www.carionfenn.com, www.toegtherwearestronger.org, www.rarediseasexpo.com) * Hootsuite & Social Media Accounts (Create and Pre-program monthly tweets) * Press Release (Release press releases on what we are doing as required) * Newsletter and E-News (Create newsletter as required) * media (Tv &Newspaper: liaison with media set up interviews with Carion Fenn) * events (Present at events to greet and help Media) * marketing events (Post Events on Media Websites, Carion Fenn Network, Facebook, Eventbrite) * content creation (Create Event Text for all programs, REQUESTED CONTENTS AS REQUIRED) * TV Show: Health 180 with Carion Fenn * create and edit content for Volunteer Ad Post * implement strategies to promote the work of the organization * promote events, activities and awareness online * must have management approval prior to responding to all internal or external communications * create and maintain marketing material with management approval. Flyers, Brochures, Banners etc.

Grant writer * develop and write grant proposals and make funding applications to foundations and other grant-making organizations * organize and submit grant requests, establish and maintain foundation contacts * maintain a calendar of submissions and other deadlines * research grants/funding opportunities * make donation requests to banks, social clubs and organizations

Create materials to visually represent the organization’s identity and ensure consistent organizational branding * create and update existing templates including letterheads, newsletters, brochures, flyers, factsheets, signage and banners consistent with brand guidelines * create graphics to be used for digital communications * support the Communications team and foundation with branding content creation * design flyers, brochures, logos and banners etc.